Useful Links

Learn About FH Online

There are many places to find hope and help for your journey with familial hypercholesterolemia (FH). The following links offer resources, community, and support for individuals living with FH.

Social Networks and Support Groups

  • Facebook FH Discussion Group

    A patient community where group members can connect with one another and share news and stories about living with familial hypercholesterolemia (FH).

  • Women Heart Support Groups

    An online community for women living with heart disease and their family members and friends.


  • The FH Foundation

    The FH Foundation works to raise awareness of FH in the public domain, medical community, and government in the United States through education and advocacy.

  • Foundation of the National Lipid Association

    The Foundation of the National Lipid Association offers patient information and education materials for people living with FH.

  • Mended Hearts

    A nonprofit organization that offers hope to heart disease patients, their families, and caregivers.

  • Heart Healthy Women

    A resource for women with information about the causes and treatment of high cholesterol.

FH Medical Information

  • Emedicine

    A site that provides an overview, presentation, treatment, and follow-up information about FH.

  • National Human Genome Research Institute

    The arm of the US National Institutes of Health that is dedicated to advancing human health through genetic research.

  • Medline

    A site that provides basic information about the causes, symptoms, treatment, and prognosis of FH.

  • The Genetic Information Nondiscrimination Act (GINA)

    Information about a federal law that was passed to protect families from genetic discrimination by health insurers and employers.

International Patient Organizations