Find Support in Community

An FH diagnosis is a lifelong journey for patients and the people that love them. It is often a path of uncertainty. Despite the fact that FH is a relatively common genetic disorder that affects approximately 1 in 500 people, there isn’t a lot of awareness around FH. It is estimated that only about 20% of FH patients are currently diagnosed. Of the nearly 80% that are undiagnosed, many will have a cardiac event or a stroke before the FH diagnosis is made. Because of this lack of awareness, newly diagnosed patients often feel that they are alone on their FH journey. These stories are here to help you understand that you are not alone and to help you connect with others who are living with FH too.

Lipid specialists and FH

A lipid specialist is a healthcare professional with in-depth knowledge of cholesterol disorders like FH. Learn more

FH resources

Download discussion guides and an FH fact sheet from the Preventive Cardiovascular Nurses Association.

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