Learn About FH Online
There are many places to find hope and help for your journey with familial hypercholesterolemia (FH). The following links offer resources, community, and support for individuals living with FH.
Social Networks and Support Groups
A patient community where group members can connect with one another and share news and stories about living with familial hypercholesterolemia (FH).
An online community for women living with heart disease and their family members and friends.
The FH Foundation works to raise awareness of FH in the public domain, medical community, and government in the United States through education and advocacy.
The Foundation of the National Lipid Association offers patient information and education materials for people living with FH.
A nonprofit organization that offers hope to heart disease patients, their families, and caregivers.
A resource for women with information about the causes and treatment of high cholesterol.
FH Medical Information
A site that provides an overview, presentation, treatment, and follow-up information about FH.
The arm of the US National Institutes of Health that is dedicated to advancing human health through genetic research.
A site that provides basic information about the causes, symptoms, treatment, and prognosis of FH.
Information about a federal law that was passed to protect families from genetic discrimination by health insurers and employers.
International Patient Organizations
Download discussion guides and an FH fact sheet from the Preventive Cardiovascular Nurses Association.