FH Resources

No matter where you are on your journey with familial hypercholesterolemia (FH), you are not alone. There are resources available that offer information, advice, and support for living with FH. Learn about FH by downloading and sharing these resources.

The FH Fact Sheet

The FH Fact Sheet

This one-page document, developed by the Preventive Cardiovascular Nurses Association, offers quick information about FH, answering commonly asked questions about familial hypercholesterolemia. It includes a diagram that helps you complete a fast family tree.

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The FH Booklet

The FH Booklet

Available in over 15 countries and counting!

Written by Norwegian lipid specialist Leiv Ose, MD, and endorsed and distributed by the National Lipid Association, the booklet is specifically designed for families with FH. A copy of the booklet can be ordered in any available language by clicking on the Contact Us link at the bottom of the page and sending an email request.

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FH Journeys From Around the Globe

FH Journeys From Around the Globe

A 28 page patient testimonial booklet created to allow FH patients, Caregivers, and Lipid Specialists from around the world to share, in their own words, their journey with FH. This booklet will give the reader an appreciation for the importance of the partnership between the FH patient and lipid specialist and the hope that a diagnosis of FH can bring. This booklet also provides a list of valuable global resources available to FH patients and their families.

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Talking FH with Your Family

Family Guide to Discussing Familial Hypercholesterolemia

This one-page guide offers tips to patients who will be discussing familial hypercholesterolemia with their families.

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Questions to Ask Your Doctor

Questions to Ask Your Doctor

This guide offers tips for talking to your doctor about familial hypercholesterolemia (FH).

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Lipid specialists and FH

A lipid specialist is a healthcare professional with in-depth knowledge of cholesterol disorders like FH. Learn more